We finally made it home yesterday (Monday) around 6pm.  The medical equipment company met us here and set up the feeding pump.  (Thanks Josh!)  Then Carla, the home health nurse came to help us get organized and begin with them again.  Poor Carla, she patiently listened to me vent because it took all day to get out of the hospital!  I was content to be there until the doctor said you can take him home (at 9am!), then I was ready to go!

Our neighbors from across the street brought me Chick-Fil-A!  Thanks Andy and Shari!  It was wonderful!
(not that I didn't loooove hospital food)

Thanks to Shannon and Emily for coming to get all of my stuff (I moved in for 2 weeks!) so I could just ride home with Terry in the ambulance and not worry about carrying anything.

Terry slept fairly well last night.  However, today he was uncomfortable all morning.  We were up at 7 and he just settled down about 2:30.  He's sleeping in his recliner. :)

We definitely have a different routine with the feeding machine!  But it's not difficult, just have to pay close attention to details.  

After we've been home a few days we'll start taking walks again...that means more pictures to come!
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Terry's doing very well today!  He rested better last night than any since we've been here.  He "sang" for about an hour last night.  It's so sweet to hear him making that noise instead of moaning in pain.

Other than his singing (which is more like humming with his mouth open) he's been pretty quite.  The last time he spoke was Thursday night, he told me he loved me. :)

Yesterday afternoon the nurses got him up in a chair for me and off we went!  We walked across the parking lot to see the water.  Usually the fountain is running, don't know why it wasn't then.  But we enjoyed it anyway.  Take at look at our excursion pictures below.  Isn't he cute in his yellow socks!

Yep, we're here for the weekend.  Terry had a good night...only had pain medicine at 4am. 

Plan to get him up and outside for a few minutes today...

We're still in the hospital.  We may be here through the weekend.  They're trying to get his coumadin level back up.  They had to bring it way down with Vitamin K  before the surgery.

He was taken off antibiotics last night!  That's good news!

And he did very well with his feeding today....it's the first day his  body tolerated it all day.  He's up to the level he needs, to get the right amount of calories.

Oops!  Spoke too soon!  The nurse just came in and checked...had to back off the feeding some.

He has moaned all day!  It seems he's in pain, but the pain medication doesn't seem to help.  :( 

Hopefully he'll feel better tomorrow....

The last couple of days have been very quiet for Terry.  He's rested a lot.  He looks great!  And he's still saying a few words here and there.

Today we took a stroll around the hospital.  There are lots of pictures of nature, lakes, trees, flowers, etc. hanging in the halls.  He really enjoys looking at those.  We didn't go outside today, just sat and looked out.

His body is tolerating the tube feedings rather well.  His potasium level is low...they're working on correcting that.  He's not pain free, but is dealing with a lot less!

Again, we appreciate all of the prayers and well wishes.  Please keep praying....

Today has been an eventful day!

Terry didn't sleep much at all last night.  In fact he talked a lot!  He had a lot of pain and said phrases between moans.  It was sad and exciting at the same time.

This morning, after giving him his bath, soaking his feet and trimming his fingernails, (yep! the spa treatment for Terry) we got him in a wheel chair and off we went!

First we roamed the halls, then sat in the waiting room for a while and looked out the window.  Then downstairs to look around a while and slip out the front door!  He enjoyed being outside so much!  He's always loved sunlight.

He took a short nap when we got back to the room.  And around 2pm they came to take him down for surgery.  Everything went fine.  He now has a PEG tube in his tummy for feeding.  I know it sounds terrible, but I'm thankful for it.  He hasn't been eating enough and finally he'll get the nutrition he needs.

He's been pretty alert since he came back up...dozing off and on.  Right now as I type this he's watching tv patiently waiting for pain meds....still wish we knew where he hurts.

Again, thank you all so much for your prayers, your words of encouragement and just your concern.

Hope you enjoy seeing the pictures of him that I've added.  I never tire of taking them. :)
He's just so cute!  (Did I say that before?) ;)

Terry has done fairly well today, a little more discomfort than yesterday.  Shannon spent the morning with us and he watched her a lot.

This afternoon he told his Mom, "I love you too"!  He has spoken several times today and nodded to questions.  Little things we are thrilled to see!

He had a busy day!  As I said, Shannon spent the morning.  2 men from Church visited, Emily came this afternoon, then Shannon, Bryan, Isaac and David came this evening (brought dinner! yum!)

Isaac sang to him some, then David, then all of us.  He really seems to enjoy singing. 

Right now he's in pain.  :(  Trying to get it under control.  Thank you all for the prayers.  As you see, they are being answered.

Tomorrow (Thursday) at 2 he's supposed to have a feeding tube put in his stomach.  It sounds terrible, but I really think it's a good thing.  He will finally get the nutrition he needs.  We have struggled for a long time to get enough food in him and it was a losing battle.  Hopefully this will enable him to build his strength and feel better.

As I said to Shirley (Terry's Mom) recently, Terry has good days and GREAT days!  Today was a GREAT day!

He has been relaxed, slept well, was alert when he was awake, watched a little tv, had no pain medicine at all!

He has returned lots of kisses!  Even kissed Shannon on the cheek! :)

And he spoke 2 words!  Prayers are being answered!

We were visited today by Jordan Lyons!  Some of you know him, probably all of you either know or have heard me speak of Hillie, one of my best friends in Germany.  Well, Jordan is her youngest son!  He's moving to Denton, so we'll be seeing lots more of him!

10 (yes 10!) new pictures below.  It looks like several repeats, but they are each a little different.  All were taken today, Monday.

Terry has been in the hospital since Saturday.  Over about a 4 day period he gradually stopped eating and drinking.  He has a bladder infection and because he wasn't swallowing at all, I was unable to get his antibiotic in him.  So, after calling his nurse and the nurse talking to the doctor, here we are.

It's Monday and after being on an IV with nutrients, his antibiotic and some extra pain meds, he's resting well.  He's more aware today, also.  He even returned a kiss this morning!

We've had a lot of difficulty getting him to eat and drink enough and he's lost a lot of weight.  He may need a feeding tube.  Please help us pray about this decision.

We'll probably be here several days.  I'll try to post daily to keep you all updated.

Thank you all so much for the many, many prayers!

The good news on the last post was short lived.  Terry stopped talking again and really hasn't felt well this week.


However we did get some good news; the bone scan was normal and he had an MRI of his brain and it showed no change.

But we found out today he has a staph infection in his bladder. :(  Poor guy just can't catch a break!  It's no wonder he's felt so bad.  He's now on 2 antibiotics for the next 2 weeks.  We hope and pray they do the job or else he'll have to go in the hospital.

He hasn't been eating and drinking enough the last few days.  Hopefully that'll change as the antibiotics start to work.